The mother of a terminally ill girl with ‘days to live’ says she can’t afford to keep the heating on because of the cost of living.
Anastasia Hazell, seven, was diagnosed with an incurable brain tumor last March and was given only one year to live.
Her mother, Alexandra Hazell, 35, said she is struggling to keep the heating on in the family’s home as her daughter’s condition deteriorates.
Ms Hazell said: ‘The cost of living has just skyrocketed. We had to turn the heating off twice.
Alexandra Hazell, 35, struggles to keep the heat on to warm up her terminally ill daughter Anastasia Hazell, seven
“We just want to spend time with her, but all my time is spent worrying about this.”
Anastasia, who has a DIPG tumor, cannot speak or walk and must eat through a feeding tube.
The once ‘healthy and popular’ schoolgirl is entering her final days as she surpasses the prediction of doctors who thought she wouldn’t live past March.
Anastasia is cared for at home by nurses and family because the family wanted to be together instead of having their daughter in the hospital.
“We just want to spend time with her, but all my time is spent worrying about this,” said Ms Hazell
She also lives with her father James, 35, and brother Ryker, three, in a village near Great Yarmouth, Norfolk.
Ms Hazell, a support worker, said: ‘Anastasia is nearing the end and we still have to rattle for money.
‘Our heating has failed twice because we are out of oil. It’s just impossible.
“It got so bad that we all camped in her room with a wood-burning stove. We threw wood on the fire to make the room warm enough to get through the night.
“The other time we ran out of oil, we had to put Anastasia on heated blankets because she was turning blue.
The family of four camps in Anastasia’s bedroom with a wood-burning stove to keep it warm
The family struggles to give their daughter a warm bath or shower at times due to the cost of living
“We haven’t been able to give her a warm bath or shower at times. It’s crazy.
“There are weeks when we can’t afford the basic things.
‘We set aside £1,000 for last Christmas, but that had been swallowed up beforehand by food and heating costs.’
Anastasia was described as a healthy girl before the devastating diagnosis last March, a week after her sixth birthday.
Her condition – a diffuse intrinsic pontine glioma, or DIPG – is a rare and aggressive brain tumor that is nearly untreatable.
Doctors said Anastasia’s tumor was incurable and gave her about 12 months to live.
Anastasia has a diffuse intrinsic pontine glioma, or DIPG. It is a rare and aggressive brain tumor that is almost untreatable
Mrs. Hazell said, “Anastasia was a perfectly normal girl. She did very well in school.
‘She was a singer and dancer. Totally healthy and normal girl.
“She had many friends and was one of the most popular girls in the class.
“The diagnosis came completely out of the blue. One day we noticed she was a bit weak on one side.
“The doctors found a tumor and she was rushed to Addenbrooke’s Hospital. Then her whole life changed.
“She’s just that bad. Last night she had trouble breathing.
‘I think about how many days we have left. It’s a nightmare.’
The family has set up a fundraiser for Anastasia.